weezie's Cancer Blog
August 13, 2008
| THE ONCOLOGIST'S NIGHTMARE WORDS | Views: 587 |
Well I heard the dreaded news yesterday. It is now confirmed after 3 separate bone scans – Jan, April, August, that the image on my spine is metastisized cancer. The Dr.’s were surprised that it moved that quickly from last May’s lumpectomy. I asked some questions that I really think I shouldn’t have cause the reply was something I was not ready for. I asked what the prognosis is for bone cancer and he said 2 years. OMG that just stunned me. I honestly thought that they can continue to treat and maintain a life for longer than that. I am just going to rest my brain this week and then start surfing the net for more information. At this point my blood is very good as in: good for a non cancer person. That is: no calcium levels showing. In fact the area T5 & T6 have reduced slightly with drugs I am taking – Armiidex and Clasteon. The Dr. was pleased with the result but unless I pushed him about the future he wasn’t going to say anything. Looks like every day brings something new. I will be doing another full body scan and CT in November as they are watching me NOW very carefully. Will keep you posted on my progress or symptoms if any arise. God damn it I thought I was special and that the lumpectomy and radiation did the trick. Guess I am picked as God’s special partner in helping you out. Glad to be of service gang. Hope you are all feeling well or if not, coping with the side effects of your drugs. Life is good as long as you’re here. think I will also look at our vacation for February since winter in Ontario can be bloody cold (like last year). Atleast that is something to look forward to. My pictures show my husband and I in Mayan Riviera at Eldorado Royale. That was some special place. I go to tripadvisor.com to find information on new places to travel. Since we bought Exotic Travel weeks that can convert to timeshare weeks I am looking to exchange for another place in maybe Puerta Plata, any place warm. I thought I would never have to report this finding and that I was the lucky one. Oh how niave I am. Well, here we go into the slippery slope of testing, waiting, and emotionaly coping. Gulp. I need to take a breather here.
Love to all that have helped thus far. Weezie
Thanks for your support -
Gosh I am so sorry. You will be in my prayers. I know you can go longer then 2 years with bone cancer because I talked with a girl not to long ago whose mother had been going round with it for several years…...They just kept putting her in remision.. Are they really sure?
Weezie,
&^%$***# suck! I am praying and crying and typing…suck!
I will keep praying. The rest will come and go. Take a couple days to regroup and then keep us posted as to your journey. You are my friend and I refuse to concede too just 2 more years for you.
Hugz
Mac
Judy how encouraging. I think I just wasn’t ready for that. He seemed to say that he was pleased so far and that we would take it step at a time. When he said 2 years, and I just sat dumb founded I didn’t know what to say after that so I’m not sure if he meant my case or a general rule of thumb. He was however pleased that the area he was concerned with (now not an old back injury) was slightly better than April’s scan. I am just praying and trying to put this information far away in my mind cause I plan to be here for longer than that. Thank friend for responding. How long is your friend been going since her diagnosis? Is she on this Blog for a Cure? Would love to hear her story. How are things going for you these days? Hopefully well. Take care and stay in touch. I will from time to time try to post any new information and that is hopefully the posititve stuff. Weezie
Hey Mac; You great big teddy bear you. Always love to hear from you. It is so wonderful to have supporteres especially right now since I heard this news. You know I will do BIG BATTLE but just going to take the week to chill and regroup. Thanks so much all of you. Love you all big and deep. Weezie
Oh no Weezie. :( What a job to have to say that to anyone and it’s even more horrible if the news is directed at you. People beat the odds everyday. Look at one great example was Randy Pausch; which everyone knows his story.
@$%^%$@# -_- you know not to give up though! You have plenty of people who love you, myself included. Keep us posted as you said!
As always, I promise to keep you in my prayers.
Thanks Gemma; you know I always respond to yours. Who is Randi Pausch? Love to know how I can find out his story. Thanks.
Weezie
Get on the internet and look for the information on you condition , There is something out there.
As for right now you are in my heart and my prayers,
Hug sherri The rest of you out there, love being sent.
I know you have it in you to do many years, they are developing new techniques and procedures all the time. There will be a treatment for you. Blessings to you and yours.
Weezie – No, that sucks. ugh! I realize more and more you just never know which way things are going to go. Why did you first do a bone scan? Did you have pain or was it just a normal scan they recommended? We are thinking of you over here.
Weezie, *&%$ it all! I’m sorry to hear the crappy news. Try not to think about the numbers. If you’re looking for a nice warm place to visit, Texas is always warm! =o) I love ya, lady! Many hugs and prayers headed for you!
Weezie,
I can really relate when they start giving you numbers. But, when they gave me those numbers almost 14 years ago, little did they know that a new drug would be passed by the FDA and put me in REMISSION. Never, Ever Give Up!
My prayers are with you,
Patty
That is so crazy. It makes me want to run out and scan everything. It is strange to me to read how everyone’s doctor has a different approach to things. Sounds like your doctor is taking extra steps which is good. Wish the results were better. I have learned to stay on top of every little pain. Maybe that is turning me into a freak.
Hey Weezie….the lady I was talking about has had breast cancer problems for 10 years. She has been in and out of remission and still going. It has been in her bones for about 5 years and they keep giving her chemo and all and she is still hanging around. I know she still gets out of the house and goes to the bingo and things. Hang in thee it will all be fine…....Hugs and prayers…..
Okay Weezie! Don’t take that prognosis to heart. My cancer was initially metastasized to my spine (both cervical and thoracic), my ribs, my skull, and my hip when I was diagnosed. ALL of the bone cancer went away with chemo. The soft tissue tumors have been more of a challenge. It has come back to my bones several times, in new places, and EVERY time has gone away with chemo. My problem is my primary cancer is so overwhelming it keeps seeding these new tumors. Anyway, I can’t see why your bone mets can’t respond well too. I was given 18 months to live and I am almost at 21 months and going strong. So do that research and believe that you will respond to treatment. Get a second opinion. I am very angry at your news. You are in my prayers!
Gaile
Gaile; You angel for that. My hopes are high and you really and clearly showed me how much you have really gone through to get to where your statement is truth. God I love the people here. Makes everything tolerable, ok, fine, truth bearing, tear jerking, faith building, anxiety ridden, newsworthy, miraculous, heart stomping, shocking, anger driven, punch happy but guess what? All those feelings are real and we can feel them, touch them, hear them and for that THANK YOU GOD. Just to feel is one great thing. Weezie
Hi, Weezie.
Thank you very much for your support. I feel good to have people like you here who understand what it means to have the condition.
I am very sorry to hear this. But as everyone here said, people continue to live and lead a happy and fulfilling life long after the prognosis suggested. I pray for you.
I totally agree, CANCER SUCKS.
Yuyu
Hi Weezie,
I think two years is completely unacceptable, don’t you. Are they sure at 100% it is cancer since your blood is clean?? Doesn’t make sense. Thank you for your explanation on Cansor. I am a Doctor and didn’t know most of what you wrote. Do you know where I can find the cansor diet? Big hug and prayers.
Kathleen
Hi Kathleen; Thanks for your support. I actually think you read another person’s post on cansor and the diet. Don’t know anything about the subject. I just eat whenever I feel hungry which is quite often (due to Arimidex). Food still tastes great. I am avoiding any cold cuts as a big news release came out 2 days ago that Maple Leaf and Schneider’s had a big recall on their deli meats that has caused about 20 people to come down with Listeria and one person died of it too. That means all the Submarine shops and MacDonald’s in Canada are not serving any deli meats processed by those 2 outfits. That’s pretty scary. My husband and I pretty much eat at home and we don’t buy processed meats because they taste too much of chemicals. I haven’t managed to do the no sugar no starch thing because I just couldn’t bear to deny myself the foods I grew up with. Not sure how healthy an attitude that is, but I feel I deserve to live with my tastebuds in tact. If you find a great diet I will look for the post, after all you are Doc. Thanks. Weezie
Kathleen; Just found a newsletter about upcoming seminars in my area. One of the people speaking is author Robert Beliveau, Ph.D. He is a renowned cancer researcher of Molocular Medicine at the Neuro-surgery Dept. of Notre-Dame Hospital in Montreal, Canada. His best selling books “Foods that Fight Cancer; Preventing Cancer Through Diet; & Cooking with Foods that Fight Cancer. If that helps any. Weezie